Today is Chronic Fatigue Awareness Day. This is a day close to my heart as my 13 year old son has CFS, also known as Myalgic Encephalomyelitis, or ME.
Nearly four years ago, he came down with glandular fever. It took us around 18 months to get a diagnosis of ME/CFS!
This has had a huge impact, not only on his life, but also family life, and part of the reason is that it’s so misunderstood.
He only goes to school part time, and has regular appointments with doctor’s at the Royal Children’s Hospital to monitor his progress. There are many activities he wants to do that he can’t. For example, he really wants to join the Scouts, but it’s not an option right now, as well as attending school camps, and similar activities.









